SveDem, the Swedish Dementia Registry - A tool for improving the quality of diagnostics, treatment and care of dementia patients in clinical practice
Journal article, 2015
Background: The Swedish Dementia Registry (SveDem) was developed with the aim to improve the quality of diagnostic work-up, treatment and care of patients with dementia disorders in Sweden. Methods: SveDem is an internet based quality registry where several indicators can be followed over time. It includes information about the diagnostic work-up, medical treatment and community support (www.svedem.se). The patients are diagnosed and followed-up yearly in specialist units, primary care centres or in nursing homes. Results: The database was initiated in May 2007 and covers almost all of Sweden. There were 28 722 patients registered with a mean age of 79.3 years during 2007-2012. Each participating unit obtains continuous online statistics from its own registrations and they can be compared with regional and national data. A report from SveDem is published yearly to inform medical and care professionals as well as political and administrative decision-makers about the current quality of diagnostics, treatment and care of patients with dementia disorders in Sweden. Conclusion: SveDem provides knowledge about current dementia care in Sweden and serves as a framework for ensuring the quality of diagnostics, treatment and care across the country. It also reflects changes in quality dementia care over time. Data from SveDem can be used to further develop the national guidelines for dementia and to generate new research hypotheses.
Author
Dorota Religa
Karolinska University Hospital
Karolinska Institutet
S. M. Fereshtehnejad
Karolinska University Hospital
P. Cermakova
Karolinska Institutet
A. K. Edlund
Karolinska University Hospital
S. Garcia-Ptacek
Karolinska University Hospital
Karolinska Institutet
N. Granqvist
Trädgårdstorgets primary care unit
Anne Hallbäck
Norrtälje Municipality
Kerstin Kåwe
Karlstad Central Hospital
Bahman Farahmand
Karolinska Institutet
Lena Kilander
Uppsala University
Ulla-Britt Mattsson
Sahlgrenska University Hospital
Katarina Nägga
Lund University
Peter Nordström
Umeå University
Helle Wijk
University of Gothenburg
Anders Wimo
Karolinska Institutet
Uppsala University
Bengt Winblad
Karolinska Institutet
Maria Eriksdotter
Karolinska University Hospital
Karolinska Institutet
PLoS ONE
1932-6203 (ISSN) 19326203 (eISSN)
Vol. 10 2Subject Categories (SSIF 2011)
Other Medical Sciences not elsewhere specified
DOI
10.1371/journal.pone.0116538
PubMed
25695768