Young carers as co-designers of a web-based support system - the views of two publics
Journal article, 2012

Aim: The aim of the study was to reveal young carers’ views of design of a web-based support system (WBSS) directed to them and the differences between their views and the views of project representatives (PRs), in a participatory design process. Methods: Eight young people, 17–24 years, were involved in either a work or a test group. The work group participated in video-recorded design meetings with representatives of the project. Content analysis and Dewey’s concept of public were applied on the data. The test group worked from their homes and data were collected via test forms and used as supplemental data. Results: Four themes were revealed, constituting key parts in the design of the WBSS: Communicating the message, Ideational working principles, User interaction and User interface. Furthermore, decisive differences between the views of participants and PRs were found. Conclusion: The four key parts should be considered in a WBSS directed to young carers. The study also suggests that early user involvement and critical reflection in the design process itself may be crucial to discern differences in perspective between designers and users.


Participatory design

young carers




Mikael Elf

University of Gothenburg

Hans Rystedt

University of Gothenburg

Johan Lundin

University of Gothenburg

Barbro Krevers

Informatics for health & social care

1753-8157 (ISSN)

Vol. 37 4 203-216

Subject Categories

Health Care Service and Management, Health Policy and Services and Health Economy

Information Science

Other Social Sciences not elsewhere specified



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