Experiences before and after nasogastric and gastrostomy tube insertion with emphasis on mealtimes: a case study of an adolescent with cerebral palsy
Artikel i vetenskaplig tidskrift, 2021

Purpose: Adolescents with cerebral palsy may need a feeding tube due to feeding challenges, since nutritional intake and mealtimes may be negatively affected. The purpose of the study was to describe and better understand how one adolescent with cerebral palsy and her parents experienced mealtimes before and after a nasogastric and gastrostomy tube insertion and how the use of these feeding tubes was experienced in daily life. Methods: Individual interviews were performed with one adolescent and each of her parents. In total, six interviews were conducted on two separate occasions. The qualitative approach known as Interpretive Description was used during the analysis. Results: Four thematic patterns were identified within the data: (i) struggling with nutritional intake, (ii) the paradox of using an aid, (iii) being different, and (iv) challenges of public mealtimes. Conclusions: The results showed that four themes influenced daily mealtimes in adolescents with cerebral palsy and a gastrostomy tube. Nutritional intake and mealtimes may be difficult, which is why using a gastrostomy tube can be a relief. However, the gastrostomy tube can also pose a challenge and a paradox. Time of change and acceptance seems necessary in order to meet these challenges.



cerebral palsy

gastrostomy tube



Ulrika Mårtensson

Göteborgs universitet

Mats Cederlund

Göteborgs universitet

Margaretha Jenholt Nolbris

Göteborgs universitet

Sahlgrenska universitetssjukhuset

Karin Mellgren

Göteborgs universitet

Helle Wijk

Sahlgrenska universitetssjukhuset

Göteborgs universitet

Chalmers, Arkitektur och samhällsbyggnadsteknik, Byggnadsdesign

Stefan Nilsson

Göteborgs universitet

International Journal of Qualitative Studies on Health and Well-being

1748-2623 (ISSN) 17482631 (eISSN)

Vol. 16 1 1942415



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