Exploring the meaning, role and experiences of a patient-led social innovation for people affected by cancer: a new collaborative care model complementing traditional cancer rehabilitation in Sweden
Journal article, 2021

Objective Kraftens Hus is the first support centre in Sweden designed by and for people affected by cancer, including patients, family, friends, staff members and local community representatives (collectively 'stakeholders'). The purpose of this study was to explore the meaning, role and experiences of Kraftens Hus stakeholders using a patient and public involved methodology. Methods To understand and map the experiences of visitors to Kraftens Hus, we applied concept mapping (CM), a mixed methods approach where data are collected and analysed in four structured steps designed to capture the diverse perspectives of multiple stakeholders. Qualitative interviews with relevant stakeholders supplemented the CM findings. Results The final concept map contained six clusters of ideas. Within the clusters, there was a recurring theme that cancer-affected people value accessible and long-term psychosocial support (PSS). The intended emotional, social and practical needs identified in a previous design process seem to have been addressed and appreciated by Kraftens Hus visitors. Conclusion Kraftens Hus is an example of a new patient-led social innovation based on a life-event perspective and integration of resources from different sectors in society. By focusing on life, not the disease, the care continuum expands, and long-term PSS is provided alongside cancer treatment. The evaluation confirms that PSS should focus on health and well-being in the broadest sense.

quality improvement

community-based participatory research

patient-centred care

social sciences


Frida Smith

Chalmers, Technology Management and Economics, Service Management and Logistics

Andreas Hellström

Chalmers, Technology Management and Economics, Service Management and Logistics

Katrin Asta Gunnarsdottir

Region Västra Götaland

Anna Genell

Region Västra Götaland

Erik Eriksson

Chalmers, Technology Management and Economics, Service Management and Logistics

Carina Mannefred

Region Västra Götaland

Thomas Bjork-Eriksson

University of Gothenburg

Region Västra Götaland

Lisa Vaughn

University of Cincinnati

Cincinnati Children's Hospital Medical Center

BMJ open quality

23996641 (eISSN)

Vol. 10 4 e001400

Subject Categories

Health Care Service and Management, Health Policy and Services and Health Economy


Social Work





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