Exploring the meaning, role and experiences of a patient-led social innovation for people affected by cancer: a new collaborative care model complementing traditional cancer rehabilitation in Sweden
Artikel i vetenskaplig tidskrift, 2021

Objective Kraftens Hus is the first support centre in Sweden designed by and for people affected by cancer, including patients, family, friends, staff members and local community representatives (collectively 'stakeholders'). The purpose of this study was to explore the meaning, role and experiences of Kraftens Hus stakeholders using a patient and public involved methodology. Methods To understand and map the experiences of visitors to Kraftens Hus, we applied concept mapping (CM), a mixed methods approach where data are collected and analysed in four structured steps designed to capture the diverse perspectives of multiple stakeholders. Qualitative interviews with relevant stakeholders supplemented the CM findings. Results The final concept map contained six clusters of ideas. Within the clusters, there was a recurring theme that cancer-affected people value accessible and long-term psychosocial support (PSS). The intended emotional, social and practical needs identified in a previous design process seem to have been addressed and appreciated by Kraftens Hus visitors. Conclusion Kraftens Hus is an example of a new patient-led social innovation based on a life-event perspective and integration of resources from different sectors in society. By focusing on life, not the disease, the care continuum expands, and long-term PSS is provided alongside cancer treatment. The evaluation confirms that PSS should focus on health and well-being in the broadest sense.

quality improvement

community-based participatory research

patient-centred care

social sciences

Författare

Frida Smith

Chalmers, Teknikens ekonomi och organisation, Service Management and Logistics

Andreas Hellström

Chalmers, Teknikens ekonomi och organisation, Service Management and Logistics

Katrin Asta Gunnarsdottir

Västra Götalandsregionen

Anna Genell

Västra Götalandsregionen

Erik Eriksson

Chalmers, Teknikens ekonomi och organisation, Service Management and Logistics

Carina Mannefred

Västra Götalandsregionen

Thomas Bjork-Eriksson

Göteborgs universitet

Västra Götalandsregionen

Lisa Vaughn

University of Cincinnati

Cincinnati Children's Hospital Medical Center

BMJ OPEN QUALITY

2399-6641 (eISSN)

Vol. 10 4 e001400

Ämneskategorier

Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi

Omvårdnad

Socialt arbete

DOI

10.1136/bmjoq-2021-001400

PubMed

34686486

Mer information

Senast uppdaterat

2021-11-04